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Comment: Revised and shortened introduction

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Abstract: This Draft Report analyzes the "Adolescent" (Julie Adams" ) use case for granularly segmenting personal health data, developed by Protecting Privacy to Promote Interoperability (PP2PI), and assessing ways the User-Managed Access (UMA) protocol can address this challenge.

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Copyright Notice: Copyright © 2021 Kantara Initiative and the persons identified as the document authors. All rights reserved. This document is subject to theKantara IPR Policy - Option Patent & Copyright: Reciprocal Royalty Free with Opt-Out to Reasonable And Non discriminatory (RAND) (HTML version).

Table of Contents

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Why Read This Report?

The Protecting Privacy to Promote Interoperability (PP2PI) Workgroup is a national multidisciplinary , an interest group of expert stakeholders across the industry assembled to address healthcare industry, is working on the problem of how to granularly segment segmenting sensitive health data. The opportunity is to protect improve patient privacy and to promote both interoperability and care equity.  

Recognizing that the problem is complex, PP2PI has organized into multiple collaborating working groups as indicated below.

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PP2PI has created PP2PI has developed several use cases to illustrate both the challenges and the solutions to many challenges involved in this complex problem, as well as solutions.

User-Managed Access (UMA) is one standard that supports PP2PI’s core goal of securely sharing clinical data while protecting patient privacy.   This paper will delve into the specifics of report delves into the PP2PI ‘Adolescent’ "Adolescent" use case and , personified by "Julie Adams". We explain which specific problems can be best solved with UMA , including an explanation of how UMA adds value to this problem.As can be seen, by the diagram above, the total problem will be solved from multiple directions.  As such, this paper will identify which specific aspects of the user story are ‘out of scope’, with the assumption that they will be solved in other ways.  As an example, this paper will not take a particular stance on what the policy isand the benefits of taking this approach.

Acknowledging that the problem space includes many business, operational, legal, technical, and societal ("BOLTS") aspects, we identify which aspects are in scope or out of scope for UMA. As an example, we won't take a stance on what policy would be appropriate, but rather given a certain policy, this is how that policy will be enforced.  (It is understood that other workgroups will be exploring/resolving policy issues, etc.)

Notes:

Eve will try to shorten the current text

Can we move the 'what is pp2pi' 'what is kantara' to an end section? or an 'about this paper' 

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The "Adolescent" Use Case

** Comments in 'Info' boxes are temporary notes to our team and would be removed later.

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