[KI-LC] LC discussion of ONC final draft Trust Registry proposal

Kay Chopard kay at kantarainitiative.org
Fri Jul 30 21:09:34 UTC 2021

Thanks Noreen. So does this mean this is ready to be sent to the Board?

Just checking if we needed to get that forwarded. Thank you.

Kay Chopard
Executive Director
Kantara Initiative Inc.

On Thu, Jul 29, 2021 at 5:31 PM Noreen Whysel <nwhysel at gmail.com> wrote:

> This is the latest. I don’t believe any comments or edits have beeen made
> since the LC meeting.
> Noreen
> On Jul 21, 2021, at 11:18 AM, jim kragh <kragh65 at gmail.com> wrote:
> Andrew, the ONC Trust Registry proposal attached includes an *updated
> format* of proposed costs for this 12 month demonstration project,
> There are no other changes to the document.
> Looking forward to our session,
> Jim
> Kantara Chair
> On Tue, Jul 20, 2021 at 7:04 PM Andrew Hughes <andrewhughes3000 at gmail.com>
> wrote:
>> Hi Jim - I've added some questions and requests for clarification in the
>> document as Word comments. Perhaps we can discuss them during the LC call.
>> My primary observation is that the proposal is a bit scattered - in some
>> places it tells the reviewer that the project has one objective, then in
>> other places it describes other, different, objectives - so it's a bit
>> confusing to me.
>> Is the project intended to extend the IDEF Registry tool by adding an API
>> for data access?
>> Is the project intended to develop a conformity assessment scheme that
>> will enable assessments of apps against a published set of requirements
>> (and which requirements)?
>> Is it to establish a new Kantara assessment and approval scheme within
>> the existing Kantara trust operations program?
>> (and if the answer is 'yes' to all of the above, they will have to be
>> described a bit more fully in the proposal)
>> Put another way: what tangible things will the ONC receive in return for
>> the grant money?
>> And is the intention that Kantara will receive some tangible things as
>> well?
>> thanks
>> andrew.
>> *Andrew Hughes *CISM CISSP
>> *In Turn Information Management Consulting*
>> o  +1 650.209.7542
>> m +1 250.888.9474
>> 5043 Del Monte Ave., Victoria, BC V8Y 1W9
>> AndrewHughes3000 at gmail.com
>> *https://www.linkedin.com/in/andrew-hughes-682058a
>> <https://www.linkedin.com/in/andrew-hughes-682058a>*
>> *Digital Identity | International Standards | Information Security *
>> On Mon, Jul 19, 2021 at 11:44 AM Andrew Hughes <
>> andrewhughes3000 at gmail.com> wrote:
>>> Hi LC - *please act on this email. Some homework is required prior to
>>> Wednesday.*
>>> On our next Leadership Council call Wednesday July 21, 2021, we will
>>> spend most of the hour discussing the attached draft proposal that has been
>>> developed by FIRE WG.
>>> *Leadership Council call - Wednesday July 21, 2021 - 12:00 Eastern*
>>> https://global.gotomeeting.com/join/112012805
>>> <https://www.google.com/url?q=https://global.gotomeeting.com/join/112012805&sa=D&source=calendar&usd=2&usg=AOvVaw2J3T36uJVbpRCFCQraStUy>
>>> Kantara is figuring out the whole 'internal process to bid for/manage
>>> grant funding' and this is the first substantial one - we need your help.
>>> Generally speaking, this proposal draft will be reviewed by LC and
>>> comments provided to FIRE WG who will then take it forward to the Kantara
>>> Board of Directors for refinement then onward submission to ONC. If
>>> successfully awarded, the Kantara BOD would be the signatory and ultimate
>>> grant manager, and so they are the approver prior to submission.
>>> Our role is to ask clarifying questions and provide substantive feedback
>>> on the document. LC does not have an approver role for financial
>>> obligations of Kantara (read the bylaws and operating procedures).
>>> Note that this text is intended to test the appetite of ONC to enter
>>> into grant funding mode - it is not the actual grant proposal, which would
>>> require many more details. When we get to that stage, Kay will manage the
>>> process as ED and as a person with much experience in grant proposals and
>>> management.
>>> Thanks, and we'll talk on Wednesday - if you are unable to attend,
>>> please send your regrets in advance. Each WG should try to have at least
>>> one Chair or Vice-Chair in attendance at each LC meeting.
>>> andrew
>>> *Andrew Hughes *CISM CISSP
>>> *In Turn Information Management Consulting*
>>> o  +1 650.209.7542
>>> m +1 250.888.9474
>>> 5043 Del Monte Ave., Victoria, BC V8Y 1W9
>>> AndrewHughes3000 at gmail.com
>>> *https://www.linkedin.com/in/andrew-hughes-682058a
>>> <https://www.linkedin.com/in/andrew-hughes-682058a>*
>>> *Digital Identity | International Standards | Information Security *
>>> ---------- Forwarded message ---------
>>> From: jim kragh <kragh65 at gmail.com>
>>> Date: Sun, Jul 11, 2021 at 2:41 PM
>>> Subject: LC input/edits/approval ref ONC final draft Trust Registry
>>> proposal
>>> To: Andrew Hughes (andrewhughes3000 at gmail.com) <
>>> andrewhughes3000 at gmail.com>
>>> Cc: Kay Chopard Cohen <kay at kantarainitiative.org>
>>> Andrew, good day!
>>>                    July 11, 2021
>>> Last month you invited the FIRE Work Group to share its ‘work efforts’
>>> at the Leadership Council‘s (LC) monthly meeting that commenced with a 30
>>> minute open discussion by a LC-WG Chair, in this event, that was me ...
>>> thank you!
>>> Tom Jones and I focused our comments around our Trust Registry (
>>> www.trustregistry.org) activity which is a core feature discussed in
>>> the ONC (Office of the National Coordinator under HHS) Trust Registry draft
>>> proposal. We specifically mentioned vulnerable populations, relating to the
>>> healthcare sector, since there is a beneficial value to ONC and patients in
>>> what is being presented in this document. During our 30 minute interactive
>>> session I also noted this effort involves several Kantara Work Groups
>>> including Dr. Tom Sullivan, who chairs the Healthcare Identity Assurance WG.
>>> Last week I was invited by Kay and Matt to join them last Friday for a
>>> virtual, interactive session so they could gain insight on both the ONC
>>> project scope and support that would be required if ONC’s Trust
>>> Registry proposal (final draft attached) was awarded funds. Dr Tom did join
>>> us on the call. Kay did ask if the LC had formally received and reviewed
>>> the ONC document and I responded with a ‘No’ since the final FIRE WG draft
>>> document had only been completed the day before, on Thursday, July 8th.
>>> Hence, the very reason for this message is to request a timely review by
>>> the LC of the attached ONC Trust Registry draft document. It is my
>>> understanding, please correct if in error, that once the LC reviews, edits
>>> and accepts the document, such is recorded and is then be forwarded to the
>>> Board for review and consideration.  The urgency of this request is
>>> elevated since ONC is actively engaged in addressing Vulnerable
>>> Populations/Social Determinant problems.  Once the approval process is
>>> completed we will submit such to ONC.
>>> In advance Andrew, if you have any questions please let me know I can
>>> assist you in coordinating with the LC. In advance, thanks for your
>>> leadership and assistance.
>>> Jim
>>> Jim Kragh
>>> Kantara, Chair
>>> FIRE Work
>> <FIRE WG Trust Registry proposal to ONC (8th draft 2021-07-08) nw (1) jk
> review with SDA-s edits fin format 07-21-21(1).docx>
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