[KI-LC] LC discussion of ONC final draft Trust Registry proposal

jim kragh kragh65 at gmail.com
Wed Jul 21 12:08:06 UTC 2021

Appreciate the heads up notice Noreen, have a productive focus group
session,  Jim

On Wed, Jul 21, 2021, 8:00 AM Noreen Whysel <nwhysel at gmail.com> wrote:

> My apologies, but I just realized I have a conflict with the LC meeting
> today and can’t attend. I’m running a focus group at Noon today, which is
> not something I can easily move, unfortunately.
> Noreen
> On Jul 20, 2021, at 7:45 PM, jim kragh <kragh65 at gmail.com> wrote:
> Thanks Andrew for investing time to review the document and share your
> thoughts along with some questions. Also appreciate you sending the DHS -
> RFC invitation to other LC members for our 2 PM session Thursday.
> Have a nice evening and look forward to the LC call tomorrow,
> Jim
> On Tue, Jul 20, 2021 at 7:04 PM Andrew Hughes <andrewhughes3000 at gmail.com>
> wrote:
>> Hi Jim - I've added some questions and requests for clarification in the
>> document as Word comments. Perhaps we can discuss them during the LC call.
>> My primary observation is that the proposal is a bit scattered - in some
>> places it tells the reviewer that the project has one objective, then in
>> other places it describes other, different, objectives - so it's a bit
>> confusing to me.
>> Is the project intended to extend the IDEF Registry tool by adding an API
>> for data access?
>> Is the project intended to develop a conformity assessment scheme that
>> will enable assessments of apps against a published set of requirements
>> (and which requirements)?
>> Is it to establish a new Kantara assessment and approval scheme within
>> the existing Kantara trust operations program?
>> (and if the answer is 'yes' to all of the above, they will have to be
>> described a bit more fully in the proposal)
>> Put another way: what tangible things will the ONC receive in return for
>> the grant money?
>> And is the intention that Kantara will receive some tangible things as
>> well?
>> thanks
>> andrew.
>> *Andrew Hughes *CISM CISSP
>> *In Turn Information Management Consulting*
>> o  +1 650.209.7542
>> m +1 250.888.9474
>> 5043 Del Monte Ave., Victoria, BC V8Y 1W9
>> AndrewHughes3000 at gmail.com
>> *https://www.linkedin.com/in/andrew-hughes-682058a
>> <https://www.linkedin.com/in/andrew-hughes-682058a>*
>> *Digital Identity | International Standards | Information Security *
>> On Mon, Jul 19, 2021 at 11:44 AM Andrew Hughes <
>> andrewhughes3000 at gmail.com> wrote:
>>> Hi LC - *please act on this email. Some homework is required prior to
>>> Wednesday.*
>>> On our next Leadership Council call Wednesday July 21, 2021, we will
>>> spend most of the hour discussing the attached draft proposal that has been
>>> developed by FIRE WG.
>>> *Leadership Council call - Wednesday July 21, 2021 - 12:00 Eastern*
>>> https://global.gotomeeting.com/join/112012805
>>> <https://www.google.com/url?q=https://global.gotomeeting.com/join/112012805&sa=D&source=calendar&usd=2&usg=AOvVaw2J3T36uJVbpRCFCQraStUy>
>>> Kantara is figuring out the whole 'internal process to bid for/manage
>>> grant funding' and this is the first substantial one - we need your help.
>>> Generally speaking, this proposal draft will be reviewed by LC and
>>> comments provided to FIRE WG who will then take it forward to the Kantara
>>> Board of Directors for refinement then onward submission to ONC. If
>>> successfully awarded, the Kantara BOD would be the signatory and ultimate
>>> grant manager, and so they are the approver prior to submission.
>>> Our role is to ask clarifying questions and provide substantive feedback
>>> on the document. LC does not have an approver role for financial
>>> obligations of Kantara (read the bylaws and operating procedures).
>>> Note that this text is intended to test the appetite of ONC to enter
>>> into grant funding mode - it is not the actual grant proposal, which would
>>> require many more details. When we get to that stage, Kay will manage the
>>> process as ED and as a person with much experience in grant proposals and
>>> management.
>>> Thanks, and we'll talk on Wednesday - if you are unable to attend,
>>> please send your regrets in advance. Each WG should try to have at least
>>> one Chair or Vice-Chair in attendance at each LC meeting.
>>> andrew
>>> *Andrew Hughes *CISM CISSP
>>> *In Turn Information Management Consulting*
>>> o  +1 650.209.7542
>>> m +1 250.888.9474
>>> 5043 Del Monte Ave., Victoria, BC V8Y 1W9
>>> AndrewHughes3000 at gmail.com
>>> *https://www.linkedin.com/in/andrew-hughes-682058a
>>> <https://www.linkedin.com/in/andrew-hughes-682058a>*
>>> *Digital Identity | International Standards | Information Security *
>>> ---------- Forwarded message ---------
>>> From: jim kragh <kragh65 at gmail.com>
>>> Date: Sun, Jul 11, 2021 at 2:41 PM
>>> Subject: LC input/edits/approval ref ONC final draft Trust Registry
>>> proposal
>>> To: Andrew Hughes (andrewhughes3000 at gmail.com) <
>>> andrewhughes3000 at gmail.com>
>>> Cc: Kay Chopard Cohen <kay at kantarainitiative.org>
>>> Andrew, good day!
>>>                    July 11, 2021
>>> Last month you invited the FIRE Work Group to share its ‘work efforts’
>>> at the Leadership Council‘s (LC) monthly meeting that commenced with a 30
>>> minute open discussion by a LC-WG Chair, in this event, that was me ...
>>> thank you!
>>> Tom Jones and I focused our comments around our Trust Registry (
>>> www.trustregistry.org) activity which is a core feature discussed in
>>> the ONC (Office of the National Coordinator under HHS) Trust Registry draft
>>> proposal. We specifically mentioned vulnerable populations, relating to the
>>> healthcare sector, since there is a beneficial value to ONC and patients in
>>> what is being presented in this document. During our 30 minute interactive
>>> session I also noted this effort involves several Kantara Work Groups
>>> including Dr. Tom Sullivan, who chairs the Healthcare Identity Assurance WG.
>>> Last week I was invited by Kay and Matt to join them last Friday for a
>>> virtual, interactive session so they could gain insight on both the ONC
>>> project scope and support that would be required if ONC’s Trust
>>> Registry proposal (final draft attached) was awarded funds. Dr Tom did join
>>> us on the call. Kay did ask if the LC had formally received and reviewed
>>> the ONC document and I responded with a ‘No’ since the final FIRE WG draft
>>> document had only been completed the day before, on Thursday, July 8th.
>>> Hence, the very reason for this message is to request a timely review by
>>> the LC of the attached ONC Trust Registry draft document. It is my
>>> understanding, please correct if in error, that once the LC reviews, edits
>>> and accepts the document, such is recorded and is then be forwarded to the
>>> Board for review and consideration.  The urgency of this request is
>>> elevated since ONC is actively engaged in addressing Vulnerable
>>> Populations/Social Determinant problems.  Once the approval process is
>>> completed we will submit such to ONC.
>>> In advance Andrew, if you have any questions please let me know I can
>>> assist you in coordinating with the LC. In advance, thanks for your
>>> leadership and assistance.
>>> Jim
>>> Jim Kragh
>>> Kantara, Chair
>>> FIRE Work
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