[KI-LC] Fwd: LC discussion of ONC final draft Trust Registry proposal

Andrew Hughes andrewhughes3000 at gmail.com
Mon Jul 19 18:44:06 UTC 2021

Hi LC - *please act on this email. Some homework is required prior to

On our next Leadership Council call Wednesday July 21, 2021, we will spend
most of the hour discussing the attached draft proposal that has been
developed by FIRE WG.
*Leadership Council call - Wednesday July 21, 2021 - 12:00 Eastern*

Kantara is figuring out the whole 'internal process to bid for/manage grant
funding' and this is the first substantial one - we need your help.

Generally speaking, this proposal draft will be reviewed by LC and comments
provided to FIRE WG who will then take it forward to the Kantara Board of
Directors for refinement then onward submission to ONC. If
successfully awarded, the Kantara BOD would be the signatory and ultimate
grant manager, and so they are the approver prior to submission.

Our role is to ask clarifying questions and provide substantive feedback on
the document. LC does not have an approver role for financial obligations
of Kantara (read the bylaws and operating procedures).

Note that this text is intended to test the appetite of ONC to enter into
grant funding mode - it is not the actual grant proposal, which would
require many more details. When we get to that stage, Kay will manage the
process as ED and as a person with much experience in grant proposals and

Thanks, and we'll talk on Wednesday - if you are unable to attend, please
send your regrets in advance. Each WG should try to have at least one Chair
or Vice-Chair in attendance at each LC meeting.

*Andrew Hughes *CISM CISSP
*In Turn Information Management Consulting*

o  +1 650.209.7542
m +1 250.888.9474
5043 Del Monte Ave., Victoria, BC V8Y 1W9
AndrewHughes3000 at gmail.com
*Digital Identity | International Standards | Information Security *

---------- Forwarded message ---------
From: jim kragh <kragh65 at gmail.com>
Date: Sun, Jul 11, 2021 at 2:41 PM
Subject: LC input/edits/approval ref ONC final draft Trust Registry proposal
To: Andrew Hughes (andrewhughes3000 at gmail.com) <andrewhughes3000 at gmail.com>
Cc: Kay Chopard Cohen <kay at kantarainitiative.org>

Andrew, good day!
               July 11, 2021

Last month you invited the FIRE Work Group to share its ‘work efforts’ at
the Leadership Council‘s (LC) monthly meeting that commenced with a 30
minute open discussion by a LC-WG Chair, in this event, that was me ...
thank you!

Tom Jones and I focused our comments around our Trust Registry (
www.trustregistry.org) activity which is a core feature discussed in the
ONC (Office of the National Coordinator under HHS) Trust Registry draft
proposal. We specifically mentioned vulnerable populations, relating to the
healthcare sector, since there is a beneficial value to ONC and patients in
what is being presented in this document. During our 30 minute interactive
session I also noted this effort involves several Kantara Work Groups
including Dr. Tom Sullivan, who chairs the Healthcare Identity Assurance WG.

Last week I was invited by Kay and Matt to join them last Friday for a
virtual, interactive session so they could gain insight on both the ONC
project scope and support that would be required if ONC’s Trust
Registry proposal (final draft attached) was awarded funds. Dr Tom did join
us on the call. Kay did ask if the LC had formally received and reviewed
the ONC document and I responded with a ‘No’ since the final FIRE WG draft
document had only been completed the day before, on Thursday, July 8th.

Hence, the very reason for this message is to request a timely review by
the LC of the attached ONC Trust Registry draft document. It is my
understanding, please correct if in error, that once the LC reviews, edits
and accepts the document, such is recorded and is then be forwarded to the
Board for review and consideration.  The urgency of this request is
elevated since ONC is actively engaged in addressing Vulnerable
Populations/Social Determinant problems.  Once the approval process is
completed we will submit such to ONC.

In advance Andrew, if you have any questions please let me know I can
assist you in coordinating with the LC. In advance, thanks for your
leadership and assistance.


Jim Kragh

Kantara, Chair
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