[DG-BSC] Layers - templates, smart contracts, blockchains

John Wunderlich john at wunderlich.ca
Tue Aug 23 12:35:28 CDT 2016


James;

Further to that, it has been my experience that all of the patients on a
study sign the same consent form (with possibly one or two ancillary
consents for things like biobanking or pharmacogenetics). Only one copy of
the consent, or a pointer to a canonical copy, would need to be on the
blockchain. That would make the consent transparent to all. The patient's
consent, suitably anonymised, could be recorded on the blockchain with a
reference to the canonical consent signed. The final step would be to link
the dataset from the research back to the consent under which it operates.
That would enable subsequent researchers who seek access to study data to
confirm whether the consent allowed what their study required and, if they
then obtained access to the data, such that that access was also put on the
ledger, this would enable Alice (or her heirs or genome related family) to
know how the data was used.

Just some initial thoughts.


Sincerely,
John Wunderlich
@PrivacyCDN

Call: +1 (647) 669-4749
eMail: john at wunderlich.ca

On 23 August 2016 at 12:12, James Hazard <james.g.hazard at gmail.com> wrote:

> Very good call today.  I was very interested in the discussion of
> templated consents.  This seems very productive.  If the consents are
> authored from templates and have GUIDs, then they can be made machine
> readable even if all the machine can read is the GUID (for instance in
> scanned PDFs, which I'm told are common).  The GUID also provides a basis
> for notifications and permissions.
>
> Here is a bit of old work that I did (Primavera did the diagrams) for the
> Global Alliance for Genomics and Health.
> http://www.commonaccord.org/index.php?action=list&file=Wx/
> org/genomicsandhealth/REWG/Demo/  The complexity of the example reflects
> (some of) the complexity of the relationships.
>
>
>
>
>
> --
> @commonaccord
>
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