[DG-BSC] Layers - templates, smart contracts, blockchains
john at wunderlich.ca
Tue Aug 23 12:35:28 CDT 2016
Further to that, it has been my experience that all of the patients on a
study sign the same consent form (with possibly one or two ancillary
consents for things like biobanking or pharmacogenetics). Only one copy of
the consent, or a pointer to a canonical copy, would need to be on the
blockchain. That would make the consent transparent to all. The patient's
consent, suitably anonymised, could be recorded on the blockchain with a
reference to the canonical consent signed. The final step would be to link
the dataset from the research back to the consent under which it operates.
That would enable subsequent researchers who seek access to study data to
confirm whether the consent allowed what their study required and, if they
then obtained access to the data, such that that access was also put on the
ledger, this would enable Alice (or her heirs or genome related family) to
know how the data was used.
Just some initial thoughts.
Call: +1 (647) 669-4749
eMail: john at wunderlich.ca
On 23 August 2016 at 12:12, James Hazard <james.g.hazard at gmail.com> wrote:
> Very good call today. I was very interested in the discussion of
> templated consents. This seems very productive. If the consents are
> authored from templates and have GUIDs, then they can be made machine
> readable even if all the machine can read is the GUID (for instance in
> scanned PDFs, which I'm told are common). The GUID also provides a basis
> for notifications and permissions.
> Here is a bit of old work that I did (Primavera did the diagrams) for the
> Global Alliance for Genomics and Health.
> org/genomicsandhealth/REWG/Demo/ The complexity of the example reflects
> (some of) the complexity of the relationships.
> DG-BSC mailing list
> DG-BSC at kantarainitiative.org
This email and any files transmitted with it are confidential and intended
solely for the use of the individual or entity to whom they are addressed.
If you have received this email in error please notify the system manager.
This message contains confidential information and is intended only for the
individual named. If you are not the named addressee you should not
disseminate, distribute or copy this e-mail. Please notify the sender
immediately by e-mail if you have received this e-mail by mistake and
delete this e-mail from your system. If you are not the intended recipient
you are notified that disclosing, copying, distributing or taking any
action in reliance on the contents of this information is strictly
-------------- next part --------------
An HTML attachment was scrubbed...
More information about the DG-BSC